Finally, I am in the last three months of this drug study for Gilenya. All my penultimate and exit appointments have been made for each of the doctors/facilities involved. I've entered everything in to my calendar and I see there are three visits (multiple tests) this month, one visit a week for three weeks. April is going to be easy, just one visit to one place. May has three visits again, this time over two weeks.
While I'm pleased to have participated over the past two years, I am so. bloody. sick. of. doctors. offices. And MRIs. And eye exams. And Pulmonary and cardiac tests. And Dermatology visits that always involve something being sliced off. And Neurology exams. After May 16th - my last and final day - I don't want to see any doctor of any kind until 2012. Seriously.
March 01, 2011
February 27, 2011
How I spent my weekend
Friday: Date night at the new, nearby gun range. My husband went by there after work. Neglected to mention it to me. Was I heartbroken? No, that's not something I yearn to do like he does, but if he'd told me he wanted to go I certainly would have gone with him. He thought he'd told me. Whatever. Jerk.
Saturday I slept until 11:45. Have no idea why; I didn't realize I was that tired. Shortly after getting up, the hubby went to the bank to learn he'd majorly fucked-up. It cost him $17,500. Don't ask. Needless to say, he was a real treat for the rest of the day. Jerk.
Today the hubby slept until 10:45, and arose in a foul mood. Probably mourning the $17,500 fuck-up from yesterday. He surfed the web until about 2:30, showered and is gone again. Jerk.
This is totally not what I thought marriage was like. I'm not angry or upset, just surprised and I think a little disappointed. It's a good thing I was single for as long as I was; I like having, and am very comfortable with, alone time. And I still have a lot more of it than I'd always imagined a married woman to have, which is kind of weird.
Saturday I slept until 11:45. Have no idea why; I didn't realize I was that tired. Shortly after getting up, the hubby went to the bank to learn he'd majorly fucked-up. It cost him $17,500. Don't ask. Needless to say, he was a real treat for the rest of the day. Jerk.
Today the hubby slept until 10:45, and arose in a foul mood. Probably mourning the $17,500 fuck-up from yesterday. He surfed the web until about 2:30, showered and is gone again. Jerk.
This is totally not what I thought marriage was like. I'm not angry or upset, just surprised and I think a little disappointed. It's a good thing I was single for as long as I was; I like having, and am very comfortable with, alone time. And I still have a lot more of it than I'd always imagined a married woman to have, which is kind of weird.
February 24, 2011
Sensation Seekers?
Once or twice a day I visit MSNBC.com and scan their headlines to see if something looks interesting. Today, this one caught my eye.
http://today.msnbc.msn.com/id/41630170/ns/today-entertainment/
So I clicked on it expecting to see a Top 5 or Top 10 list of movies too scary to watch. Well, the article actually talked about why some of us are attracted to scary or disturbing movies, and labeled us as high- or low- sensation seekers.
I didn't need to read the whole article before determining I am a low-sensation seeker. Whatever. But it got me to thinking how much of that could be MS related. Since my diagnosis, it has become more and more important for me to have as much quiet around me as possible. A nice thing about working from home is I can control ambient noise - I don't have to have a radio or television on all the time. I like sunny days because I like not having any lights on if at all possible. The radio in my car is rarely turned on because I just like quiet. Sharp, unexpected noises? Oy, that is a blog post in and of itself!
Before MS, I had a headset on all day when I was sitting at my desk at the office. Thinking back on that particular habit, it's hard to imagine ever enjoying it. But you know, that's really ok. I'm not missing out on anything, and being more productive, no doubt.
I think I've always been a low-sensation seeker. MS has amplified it, but it did not cause it I'm sure.
Gotta go. Oprah's starting...
http://today.msnbc.msn.com/id/41630170/ns/today-entertainment/
So I clicked on it expecting to see a Top 5 or Top 10 list of movies too scary to watch. Well, the article actually talked about why some of us are attracted to scary or disturbing movies, and labeled us as high- or low- sensation seekers.
I didn't need to read the whole article before determining I am a low-sensation seeker. Whatever. But it got me to thinking how much of that could be MS related. Since my diagnosis, it has become more and more important for me to have as much quiet around me as possible. A nice thing about working from home is I can control ambient noise - I don't have to have a radio or television on all the time. I like sunny days because I like not having any lights on if at all possible. The radio in my car is rarely turned on because I just like quiet. Sharp, unexpected noises? Oy, that is a blog post in and of itself!
Before MS, I had a headset on all day when I was sitting at my desk at the office. Thinking back on that particular habit, it's hard to imagine ever enjoying it. But you know, that's really ok. I'm not missing out on anything, and being more productive, no doubt.
I think I've always been a low-sensation seeker. MS has amplified it, but it did not cause it I'm sure.
Gotta go. Oprah's starting...
February 23, 2011
I'm in Love
Cute and wise and witty. My kind of guy . . . errrr . . . rabbit.
http://www.youtube.com/watch?v=aXFv6JBdwsw
http://www.youtube.com/watch?v=aXFv6JBdwsw
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