November 29, 2010


Over the past week or two, everybody seems to be giving thanks for one thing or another.  Yea it was the Thanksgiving holiday and all that but it seemed every television commercial, local newscast and web page wanted to know, "What are you thankful for this holiday season?"

Everybody is thankful for family and friends.  I get it although it is a bit vague and redundant [kind of like when a beauty pageant contestant wants "world peace"].  I heard a lot of "I'm thankful for my life" which is just a cop-out. What?  That you're alive? What? More specifics, please.

I somehow managed to not have to share my list, because it's pretty long and I can't always recite it off the top of my head. Yesterday it dawned on me that [D'oh] I have this blog, a place where I can record shit and don't have to remember the details.  I can just refer people here! And I can add things anytime I want, simply by editing.  Sweet! So, here is the list - Version 1 - as of this moment (in no particular order):

- I have a roof over my head
- I don't have a mortgage
- My brother and I get along and I trust him implicitly
- My sister and I get along and I trust her implicitly
- Said siblings both have great kids whom I love *and* like
- I have phenomenal neighbors and we all have keys to each others' homes
- My husband is working
- I know a shitload of nice people
- I had the funds to make my car payment this month
- The course of my life with multiple sclerosis does *not* include unrelenting pain
- My husband loves to wash the floors
- My brother and his wife invite us to their Thanksgiving bacchanalia every year and she is the best cook on the planet
- On Thanksgiving Day - out of nowhere - my 13 year old niece gave me a big, long hug
- Sometimes I recognize my grandmother in myself
- Sometimes I recognize my dad in my brother
- The pantry is full of food
- I have clean water to drink

Now, I've got some leftovers to tackle!

November 09, 2010

Not appealing


Thanks for the emails and calendars and greeting cards and return address labels and shit.  Think your money could be better spent elsewhere though.  Anyway I gotta tell ya, when you send me an email titled "Heartbreak for the Holidays", with an attachment?  Not appealing.

Luckily the Delete button is easy to reach.  I'm just sayin'.


One who will not be guilted or depressed into giving you money

November 08, 2010

Just not feeling it. [Lots of f-bombs]

Dear [unnamed MS forum],

Back in 2005, the New York Times magazine did a small article on you, and how you were something new and unseen.  A place where patients were sharing their most intimate medical information with total strangers and detailing the course of their disease.  Fascinating, loaded with real-world experiences with tests, procedures, drugs and doctors.  At the time, it was a source of really good information [I learned about clinical trials] and if anyone appeared to be gaining financially by recommending a product, they were promptly booted off the site. It was also known that our information would occasionally be aggregated and sold to a pharmaceutical company.  Nothing personal, just some patient stats.  Hey, this is a very well-run, robust forum, they've got to make money somehow, right?

When I signed up I believe there were about 7,000 or so members.  Today there are over 22,000.  But apparently there are barely over 700 who are what's called Three Star members.  Three star members are those who are reporting things like sex, age, height, weight, prescription and non-prescription therapies, lifestyle changes, stuff like that.  In other words, the stuff that can be aggregated and put into a report for a customer to analyze.  That's 0.032% of the total population of users.  So, what are the other members doing?

Obsessing about every. little. thing.
Asking the same questions over and over, ad nauseum [there is a search box where you can find every single post with a word or phrase in it but does anyone use it?  Apparently not.]

Like this [Posts are real, Responses are mine]:

P:  How Much Pain Can MS Cause?
R:  I have pain when I do something I know better than to do like move furniture but I don't think MS has anything to do with it.

P:  Vertigo Has Entered the Picture
R:  And...what??

P:  My Spouse/Family/Friends Don't Support Me
R:  Well honey, I've read back through your posts here and I gotta tell ya, if you behave around your spouse/family/friends the way you behave on this web site, I'd drop your whiny ass off at a bus stop on my way out of town, I mean holy shit!!

P:  Scared to Exercise Now
R:  So you had a relapse after walking miles.  And that much walking is a rare occurrence for you.  Really?  Howzabout this:  DON'T FUCKING WALK FOR MILES IF YOU'RE NOT USED TO IT.  What are you, stupid? 

And today's winner is:
P: Oh My GOD!!! It hurts sooo bad!!
R: Oh for fuck's sake, obviously not that bad because you can STILL TYPE!

Yes, MS is different in everyone.  That is true.  But I really, really, really believe it's worse in those who don't stand up to it.  By that I mean, deal.  DEAL. Whining, anger and pity parties are complete wastes of time and ultimately get you NOWHERE.  So, stop.  Cut it out.  Enough.

It's a shame and I feel bad for the poor moderator. This site is more painful than an afternoon at Chuck-e-Cheese.  Well, maybe not.  I think kids at Chuck-e-Cheese are better behaved.

November 04, 2010

Just because.

I don't say this enough. I love my husband, he's a good man and I'm lucky to have him. [Doesn't mean he can't piss me off sometimes, though].