So, I'm Skype-ing with my BFF Mary Anne, and she tells me about how she found some long-lost friends and extended family on Facebook. While listening to her story - all 45 minutes if it - I started coming up with names of people with whom I might like to make contact.
Soooooooo, at about 10:30 that morning I set up an account and started searching for old friends. Thank god my boyfriend was home all day, otherwise the cat wouldn't have gotten any food and the dogs' bladders would have exploded. As I write this, my Friends list has grown and contacts are being re-established.
Makes me wonder, wouldn't it be cool if there was such a thing as Facebook for MS? Maybe call it 'Brainbook' and use it to reintroduce my brain to whatever it is in my right leg that causes it to give out on me sometimes. Or maybe my fingers, so they stop dropping stuff at most inopportune times. Fantasy? Absolutely. A COOL fantasy? AbsoFRIKKINGlutely!!
I'm a clinical trial alumnus who lives with multiple sclerosis, a husband, two dogs and two cats, while diving headlong into menopause. I've been accused of having a potty mouth and am OK with that.
February 18, 2009
February 14, 2009
Blogging makes my brain quiver
So this morning I thought I'd visit my blog because I've not been paying it much attention recently.
The first thing I always do it take a look at the other blogs I'm following to see if they've got anything new going on. That was at about 9:30 this morning and it is now about noon. Where did the last three plus hours go? Well, lemme tell ya.
I started in one blog and followed some links to other blogs. I even posted replies to a couple because I was so impressed by what I was reading. Here is what has confused me:
Why don't all blogs have one-click ability to follow them like Bogspot does? Why do I want to sign up for an RSS feed versus an email notification versus a 'follow this blog' button? What is the point of Twitter? And what the heck is a Tweet? That one REALLY isn't penetrating my brain.
While I'm at it, is there such a thing as A Bloggers Etiquette? If someone I don't know appears on my list of followers am I supposed to thank them? Should I automatically become a follower of THEIRS (which takes us back to the earlier question about all blogs not having one-click following capabilities)?
HELP!! Is there a 'Blogging for Dummies' book? Or even an 'Emily Posts Guide to Blogging Etiquette'? I was afraid of blogging for such a long time because I feared it would be too complicated. So now here I am and I'm terrified about doing it ALL WRONG.
The first thing I always do it take a look at the other blogs I'm following to see if they've got anything new going on. That was at about 9:30 this morning and it is now about noon. Where did the last three plus hours go? Well, lemme tell ya.
I started in one blog and followed some links to other blogs. I even posted replies to a couple because I was so impressed by what I was reading. Here is what has confused me:
Why don't all blogs have one-click ability to follow them like Bogspot does? Why do I want to sign up for an RSS feed versus an email notification versus a 'follow this blog' button? What is the point of Twitter? And what the heck is a Tweet? That one REALLY isn't penetrating my brain.
While I'm at it, is there such a thing as A Bloggers Etiquette? If someone I don't know appears on my list of followers am I supposed to thank them? Should I automatically become a follower of THEIRS (which takes us back to the earlier question about all blogs not having one-click following capabilities)?
HELP!! Is there a 'Blogging for Dummies' book? Or even an 'Emily Posts Guide to Blogging Etiquette'? I was afraid of blogging for such a long time because I feared it would be too complicated. So now here I am and I'm terrified about doing it ALL WRONG.
February 09, 2009
PCV = 37
Yep, we did another blood test last Thursday and Wags keeps getting better and better. We've got our fingers crossed for this week that we hit and maybe exceed the magic 40.
Wags is the best patient! Poor pup has a major steroid appetite going on. Baby carrots are now his best friends.
Wags is the best patient! Poor pup has a major steroid appetite going on. Baby carrots are now his best friends.
February 03, 2009
$800 + $260 = not my problem!
So these two trips to the derm have resulted in charges totaling over $1,000!
I was a little bit concerned because I'd thought all this stuff was being paid by the drug study. Not so concerned I was actually losing sleep over it or anything, but I DO want people - even doctors - to get paid for their services in a timely manner. So, a quick phone call to the dermatologists office confirmed the study site was also receiving the bills, and paying them. I think the words were, "Oh, just ignore them, they're not your problem. Throw them out."
Now if I can just find someone to pay my Amex bill...
I was a little bit concerned because I'd thought all this stuff was being paid by the drug study. Not so concerned I was actually losing sleep over it or anything, but I DO want people - even doctors - to get paid for their services in a timely manner. So, a quick phone call to the dermatologists office confirmed the study site was also receiving the bills, and paying them. I think the words were, "Oh, just ignore them, they're not your problem. Throw them out."
Now if I can just find someone to pay my Amex bill...
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