March 02, 2009

I MADE IT!!!

Many times I didn't think I'd ever get here, but I managed to survive February without killing myself and March has arrived!

In two days I go do my official Baseline tests for the Fingolimod study.

Two weeks FROM TODAY I will be getting my first pill! WOO-HOO!

Doing the Happy Dance (while remaining seated of course).

February 26, 2009

Where's the emergency brake?

Wags' PCV today is 31.

I guess I should be glad that he was INCREASING by four points per week and he's only DECREASING by two points per week, right?

February 24, 2009

Mind power?

I used to spend quite a bit of time in this one MS-centric forum on the web. It's a web site that has experienced some positive press in articles and broadcasts by the New York Times, Business Week and CNN. In less than a year I've seen this site grow in total membership by more than 4,000 people.

I find that now I don't have the patience to keep up with how busy the discussion boards are there these days. There is a lot of crap on there and a ridiculous amount of trivial bullshit.

I feel for the newly diagnosed and was once there myself, but feel as though I can't hold their hands and answer all their questions. I really don't remember being like that, so freaked out by every little symptom. I only freaked when I couldn't speak, walk or see. I sometimes worry that I am losing empathy.

In reality though, I'm not. I'm simply out of patience with people who would rather wallow in an unpleasant mindset than make any effort at all to take charge and find a way to get out of it. Life is good. If at any time I start to question that statement I just think about those who have lost their homes, can't pay their utilities, can't afford food at the grocery.

My point is: MS sucks, but things could really be a whole helluva lot worse. Suck it up people!

P.S. I'd like to give props to Jess, whose words I have seriously borrowed for this post.

February 19, 2009

Getting Wags pointed in the right direction

This morning his PCV was 33. Down from 35 last week, which was down from the previous weeks' 37. Damn!!

The vet ordered azathioprine (Imuran), an additional immunosuppressant to use in tandem with the Prednisone for a few weeks. The azathioprine can take some weeks to show results, according to the veterinary sites I've been reading. I just hope Wags is NOT one of the approximately 10% of dogs who cannot tolerate this new weapon.

Poor pup...